EAE Hub model reduces barriers to early autism diagnosis


A brand new examine led by Indiana College College of Medication researchers reveals main care clinicians who obtain specialised coaching could make correct autism diagnoses for over 80 % of younger youngsters referred with developmental delays, offering compelling proof that community-based fashions of autism analysis are a possible resolution for bettering entry to this wanted service. They lately revealed their findings in Pediatrics.

One in 36 youngsters are actually identified with autism, in keeping with the newest 2023 report from the Facilities for Illness Management. In lots of areas of the county, waitlists for autism diagnostic evaluations usually exceed a 12 months and households usually journey lengthy distances to entry the restricted variety of specialists who’re certified to carry out these evaluations.

The bottleneck households expertise of their street to an correct prognosis is a public well being drawback, as a result of these delays in prognosis result in delays in accessing intervention companies that are recognized to enhance baby and household outcomes.”

Rebecca McNally Keehn, PhD, assistant professor of pediatrics and lead writer of the examine

A staff of IU College of Medication college, together with Mary Ciccarelli, MD and McNally Keehn, lead the Early Autism Analysis (EAE) Hub system, a statewide community that gives specialised coaching and ongoing collaborative studying with neighborhood main care clinicians. EAE Hub clinicians carry out evaluations of kids ages 14-48 months who’re at elevated probability of autism. Almost 5,000 youngsters have been evaluated for autism of their native communities for the reason that EAE Hub system was launched by an interdisciplinary staff of IU college in 2012.

Of the 126 youngsters who participated on this examine, researchers discovered an 82 % settlement on autism prognosis between skilled EAE Hub main care clinicians and professional autism specialists. Throughout seven EAE Hub websites, there was no distinction in general accuracy of prognosis.

“With over 80 % of kids receiving an correct prognosis and nearly no over-diagnosis, our examine reveals that the EAE Hub mannequin is a legitimate and dependable strategy to early autism analysis,” mentioned McNally Keehn. “This examine supplies sturdy proof that many younger youngsters at elevated probability for autism can obtain dependable diagnostic evaluations of their native main care setting. The mannequin additionally reduces limitations for younger youngsters and their households who may in any other case must journey lengthy distances and endure lengthy wait occasions. If the EAE Hub system have been to be scaled as much as additional to fulfill the wants of all younger youngsters in Indiana, it might scale back the burden on specialty healthcare companies and scale back wait occasions for these youngsters who do want the upper degree of diagnostic experience of specialists.”

The EAE Hub system has been generously supported by the Riley Youngsters’s Basis and Kiwanis Indiana. The present examine was funded by the Nationwide Institute of Psychological Well being with pilot funds from the Indiana Scientific and Translational Sciences Institute and Purdue Massive Concept Problem 2.0.

Along with McNally Keehn, different examine authors from IU College of Medication embody Nancy Swigonski MD, MPH; Brett Enneking PsyD; Tybytha Ryan, PhD; Patrick Monahan, PhD; Ann Marie Martin, PhD; Angela Paxton; and Brandon Keehn, PhD.


Journal reference:

Keehn, R. M., et al. (2023) Diagnostic Accuracy of Main Care Clinicians Throughout a Statewide System of Autism Analysis. Pediatrics. doi.org/10.1542/peds.2023-061188.

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